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Stress - My worst enemy Options
Damned76
#1 Posted : Friday, July 16, 2010 4:37:34 PM Quote
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I can't believe the effect stress has on my RA.

You may know that I've had to apply for my own job as part of the civil service cuts that are taking place. I've been stressed about this and have finally got my application in today. Then found out that Julian has been told that he needs to justify his job in his company as they have just been taken over and and the central ops team are looking into whether it would be cheaper to farm out the transport management to a specialist company,

The depo I had in May would normally last a lot longer but all the lumps and bumps are back on my wrists and hands and my hips are so bad today I don't know how I have managed to go to work. I daren't be off sick as they are counting sick leave in this job application procedure. (Also finish for the 6 week holidays at the end of next week so really don't want to be off anyway.)

I've been told twice now that I qualify for Humira but found out that after the first time, they forgot to order it. I spoke to the hosptial last week and the nurse said she would order it and I would get a letter telling me what to do next. Still no letter ThumbDown I feel like everything is out of my control and the pain is getting worse every day.

I know I'm not supposed to apologise but sorry - I just needed a rant as people forget what I am struggling against because, until hobbling round today, I just don't look sick.

Julie
dorat
#2 Posted : Friday, July 16, 2010 4:42:44 PM Quote
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Oh Julie,

Sorry things are so bad for you at the moment. It's certainly true that stress is bad for us with RA.
Roll on your 6 weeks holiday so you can have a proper rest and lets hope that letter for your humira comes very soon.

Love and hugs, Doreen xx
JulieM
#3 Posted : Friday, July 16, 2010 5:23:27 PM Quote
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Oh that old saying 'but you don't look sick'---it's one of our worst enemies.

In my job I have been helping out in the Nursery which has meant 32 children to look after, play with, change wet clothes,mend bumps and bruises etc. I do the job just like everyone else but what makes me different is the fact that by the time I get home I am hobbling in pain, i eat lunch, go to sleep and my joints hurt.
Everyone else is going out tonight for the heads leaving party-not me-all my energy has been used up in the job.
YES I'VE CHANGED, PAIN DOES THAT TO PEOPLE.
Calmwater22
#4 Posted : Friday, July 16, 2010 6:01:44 PM Quote
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Smile Big gentle hug aww sorry hun yes stress and Ra dont mix bless well done you going in,and heres to 6 weeks good rest give nurse a poke wokey about it.
thinking of you.
lv melly
cuddly cats make my world seem so much more fun
chockers
#5 Posted : Friday, July 16, 2010 6:13:41 PM Quote
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i would be givin that up i think i hate stress christine
The chocolate eating housewife ...The washer woman .....naughty lady
BarbieGirl
#6 Posted : Friday, July 16, 2010 6:35:11 PM Quote
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[size=]Julie, so sorry you have all this stress to cope with. A friend of mine had had to apply for her own job too, and they have still cut back on staff, but everyone has to cover their work. What with this and Your partner's worry too, it will definitely take its toll on your body. The nurses need to get their act together, then at least you have some chance of feeling better. Wishing you all the best Julie x x

Julie M I know exactly how you feel, I did special needs, hoisting, up and down on floor, moving kids around etc, now I childmind 2 little ones under 2 years. By the end of the day I can hardly move. Its very upsetting when everyone goes out for the evening and you cant, I know about that too. Always having to say no, and people think you are just miserable. Not looking sick is a problem in itself, take care x x[/size]
BARBARA
Damned76
#7 Posted : Friday, July 16, 2010 7:43:18 PM Quote
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I know what you mean ladies - Julian and Jim have gone out without me - again. At least I have a break to look forward to - unlike you Barbara. Have to find things to do with Jim but it's a lot easier now he's 8.

Julie xx
JulieM
#8 Posted : Friday, July 16, 2010 7:48:43 PM Quote
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Oh I am so glad to know it's not just me who's thought of as a real party pooper.

I was accused of being 'boring' today cos I wasn't going out so I made up an excuse and said "I'm dancing on stage instead-hows that for boring!"

Whoops sorry Julie-hijacking your thread!
YES I'VE CHANGED, PAIN DOES THAT TO PEOPLE.
lizziemouse
#9 Posted : Friday, July 16, 2010 7:49:28 PM Quote
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Thinking of you Julie, I'm going thru' very similar times,

Keep that 6 weeks in the back of your mind, not long now,

What are your stress busters? Make sure you treat yourself to daily dose - one of mine is music, often does the trick
I know when Im really down as i cant even bother switching on the radio but do switch it on, important to take mind off things

plus finding at least one thing everyday to smile about, even when im down usually find more than one,
i think it helps a lot to think about the important things in our lives, puts work probs into perspective,

I know its not easy tho' specially finances which are a constant worry but most important is your health ~ hope the medics are getting things sorted for you?

Keep chin up Julie, & keep ticking off those days,
lots of love ~ from Liz xxxxx
lyn2
#10 Posted : Friday, July 16, 2010 7:51:12 PM Quote
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I'm sorry you're having a rough time at work, and feeling so poorly too. People don't understand, they think you just have to take a pill and then everything's fine. It's a good job you've got some holiday coming up. My daughter, who's a teacher, has ME. She manages to keep going in term time, then just collapses for most of the holiday.

I know stress plays a big part in RA. I was stressed for 2/3 years, and then got RA. I hope you can find something to help you relax. Can you get your partner to give you a massage, can you relax listening to your fave music? I know you must have chores to do, but your health is more important.

Lyn
Blue Star
#11 Posted : Friday, July 16, 2010 8:34:38 PM Quote
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So sorry to hear this Julie, stress is terrible for RA, try and relax this weekend and take some pain killers not long now for the summer holidays , i agree the nurse needs to get her act together , i know how hard it is to work with this disease and i am truly sorry for all you ladies , i worked as a manageress in a clothes store for the first 9 years of getting dx with RA and when i think back i just dont know how i got through it, hope your feeling better tomorrow,

Sophie x
Julia17
#12 Posted : Friday, July 16, 2010 8:59:57 PM Quote
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Hi Julie

Really sorry to hear the latest news, totally understandable that you are so stressed and need as much support as possible. Like Sophie mentioned take pain killers to pull you through til the break. I ve been using the patches and have been brilliant for me. It is very poor that you haven t receive the letter confirming your treatment, they have no idea what you are going through, always saying it I know, but its happens so much.

In my opinion stress is the very worst for RA, and its very hard to control when so much in going in your life. Keep positive, I know easier said than done - and keep remembering not much longer til the hols.

I remember - never say sorry, hope the letter arrives very soon.

Have a relaxing weekend ! Julia x
Rose-B
#13 Posted : Friday, July 16, 2010 9:08:59 PM Quote
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Dear Julie,

What a worry for you for yourself and husband job - Stress is definately a key marker to re-light
the old RA. Try and enjoy the week end and remember not long to 6 wks off - great. Are you going
any where ?

I had a steriod depo on 12th May and I had another today it appearred to last about 5 wks and grad
got worse. I would ask your doctor for another to tide you over for your 6 wk break

Rose






Paula-C
#14 Posted : Friday, July 16, 2010 9:23:50 PM Quote
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Julie

Just want to send you a big ((((((hug)))))).

If there is one thing that I have learnt it is............all the worrying in the world will not alter what is going to happen........what ever will be will be. I know its easy for me to say this because I'm not you and not going through what you are.

But the stress will only make you feel worse.

Love Paula x x
ellie99
#15 Posted : Saturday, July 17, 2010 12:14:32 AM Quote
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Oh Julie,

Im so sorry for what you are facing at the moment.....good luck with your application, I pray it goes well. I know exactly what you mean about looking well and feeling dreadful, a work collegue said to me....I know you have this nasty disease, but you would never know looking at you!

Its soooo frustrating isnt it.......

I hope you feel better soon and for gods sake stick a rocket up someone's behind and get your humira, cant you get your gp to fight for you with the hospital?

Hugs Ellie x

heather1
#16 Posted : Saturday, July 17, 2010 9:21:30 AM Quote
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Hiya Julie, sending you a big hug I work for the civil service too and they are piling the stress on big time. Only a few more sleeps til the summer holidays! hang on in there chuck andhope you feel better soon

lots of love
Heatherxxx
amanda_lewin
#17 Posted : Sunday, July 18, 2010 5:32:47 PM Quote
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Aw so sorry to read this Julie, you don't deserve it..

'Worry is like a rocking chair- it gives you something to do but gets you no where!'

Love,

Amanda
Michelle9
#18 Posted : Monday, July 19, 2010 1:37:49 PM Quote
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Hi Julie,

Sorry to hear about your news, I'm in the same boat at work at the moment, it just add's to everything else when your trying to stabalize on this disease, hope you have a nice time away and get lots of rest.

Love Michelle xx
MrsWoman
#19 Posted : Monday, July 19, 2010 1:43:40 PM Quote
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Hi Julie

Totally relate to the stress affecting RA. At the moment I am applying for jobs and finding that quite stressful. Hopefully this exercise will not be prolonged and you know where you are. Roll on your holidays so you can have a respite from all this pressure.

Wishing you the best

Mari
Maria_R
#20 Posted : Monday, July 19, 2010 9:40:06 PM Quote
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Me too with the work stress. Why can't employers recognise it and support us. We didn't ask to have this b***** disease!!!

It's hard enough coping with work, without al hte xtra pressure.

Thinking of you

Maria x
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